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| 1968- | Dr. Omar Alfi conducted the original research to study Monosomy 9P |
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| 1972 | His research was based on 6 children, 4 of whom were institutionalized. |
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| 1984 | Jon Storr, Ohio, began searching for other 9P- families through letters to genetic hospitals. Once families were located, they started writing letters to share information about their children and the syndrome. |
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| 1987 | Beverly and Jim Udell, Nevada, took over the organization of letters and made it an annual event. |
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| 1988 | A bank account was opened in Nevada to accommodate costs for the group, under the name “Support Group for Monosomy 9P”. The first pictures were shared in the annual 9P- Update Package. For many families, this was the first time they were able to see what another child with 9P- looked like. |
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| 1992 | Dr. Carol Crowe,Ohio, a Geneticist conducting research on 9P-, joins the group. We were now up to 42 families! |
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| 1994 | Dr. Stuart Schwartz joins the Research Team |
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| 1995 | We became an international organization with the addition of families from Canada and Puerto Rico. We now have 70 families in our group! |
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| 1996 | The “Support Group for Monosomy 9P” registered as a non-profit organization. We can start fundraising! Officers and Directors to govern the group. |
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| 1997 | The First Gathering of 9P- families occurred in Southern California. Fourteen 9p- families attended this get-together. Dr. Crowe was able to examine all 14 children, which added to her research. |
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| 1998 | Our name was changed to “Chromosome 9P- Network. The 2nd get-together was held in Massachusetts with 26 9p- families from 14 states and Canada attending. A web site was built. We now have over 100 families on the roster. The IRS granted us the status of a 501(c)3 organization. |
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| 1999 | The Regional is held on the southern tip of the US, in San Antonio, Texas with19 families from the US and Canada in attendance. We now have families from all over Europe. The roster goes over the 130 mark. |
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| 2000 | The Regional was held in Omaha, Nebraska with 36 families coming from 5 different countries. An e-group was started for parents to share information and get immediate answers to their questions. We have165 families in our group. |
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| 2001 | Our Regional was hosted in Birmingham, Alabama this year. About ½ of the families attending had never before seen another child like their own. Research continues with Dr. Crowe & Dr. Schwartz. We now service 190 families. |
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| 2002 | This year we had 44 families from all over the world attend the Regional in York, Pennsylvania. |
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| 2003 | The Regional was held in Palm Springs, California. 36 children with 9p- and their families from all over the U.S., Canada and England were in attendance. The roster now has 197 children/adults. |
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| 2004 | Beverly Udell relinquishes her role as the Network President and turned these duties over to the current Board of Directors. Several Committees are formed. Dr. Crowe retires as head of the research team. Dr. Schwartz continues the research project. Yearly stories are now in booklet form and on a CD. |
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| 2005 | St. George, Utah was the location for the Regional. 43 9p- children attended, including families from England and Denmark. The roster now has 216 members. |
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| 2008 | Our Regional this year will be held in Hyannis, Massachusetts. |