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| Name: Amy | Date: 1/28/2011 |
| My Aunt with 9p- just celebrated her 53 rd birthday. She goes to PARC everyday, where she has worked for the past 3+ decades. She is truly an inspiration to me. I would love to see her be apart of a fun camp or get together. Any info on that would be apreciated! |
Location: Kaysville
United States |
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| Name: Lindsay | Date: 12/18/2010 |
| My son is now 15 months old, he was diagnosed at birth.
Thank you for your information and support to the families and friends who have children in their lives with chromosome 9p deletion. |
Location: Vista
United States |
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| Name: Dawn | Date: 11/29/2010 |
| I'm so happy to have found this site. My niece was just diagnosed and everyone has lots of questions!
Thanks for being here for us to come to. |
Location: Sarasota
United States |
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| Name: wendy fallon | Date: 9/7/2010 |
| Hi Everyone
Not visited for ages hope everyone is well. David is doing OK in Supported Living still have a long way to go but slowly slowly catch a monkey so the saying goes.
Did not get round to contributing to year book for this I apologise promise next year
Take Care everyone love to you all and your SPECIAL children |
Location: Exeter
United Kingdom |
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| Name: Margaret Banks | Date: 7/30/2010 |
| hi this is Aidan Banks mum here. looking for info on seizures. over the last few weeks we have had two episodes when he has been almost vacant and unresponsive for several minuites hands stiff and mouth almost distorted, we are being referred to neurologist but looking for info from anybody. aidan is almost 15 yrs. apart from this he is doin great.. maggie.x |
Location: Scotland
United Kingdom |
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| Name: Emily | Date: 4/2/2010 |
| I would love information on 9p. My son is 2 and got diagnosed with it at birth. We really don't have too much info on it and would love to talk to others out there going through the same thing. |
Location: Wausau
United States |
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| Name: brenda switzer | Date: 3/29/2010 |
| my daughter Melissa Rowe is now 18 dianosed at birth she is a busy girl she is a girl scout with regular girls she has recieved her girl scout gold award a highest honer yeah MELISSA |
Location: virginia beach
United States |
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| Name: Heather Castelan | Date: 2/24/2010 |
| My son david will be six months on the twenty seventh of feb and i just found out that he has chromosome 9p deletion syndrome. Can any one give me info on what to expect in the future? |
Location: Harrisonvile, MO
United States |
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| Name: Melissa McKnight | Date: 11/21/2009 |
| Our son was diagnosed with 9p at birth. He is now 5 and started kindergarten in the fall. Would like to reconnect and get more information.
Thank you. |
Location: Spokane
United States |
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| Name: tiffany posey | Date: 10/25/2009 |
| I've lost contact with everyone my name is tiffany posey and my daughter angel has 9p.i have a new address so i would like to continue to recieve info. thank you angel is 4 now doing wonderful in school |
Location: middletown
United States |
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