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| | Name | Description |
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| The Genetic Alliance | A not-for-profit organization dedicated to helping individuals and families who have genetic disorders |
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| Family Village | A global community of disability-related resources |
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| National Organization for Rare Disorders (NORD) | A unique federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities |
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| MUMS | A national parent to parent network |
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| Special Child Magazine | Dedicated to Parents of Children with Special Needs |
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| Personal Ponies | A unique non-profit organization dedicated to providing disabled children with a tiny Shetland Pony to love and care for --completely without charge. |
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| iGive.com | To enable the economic power of individuals to benefit their chosen communities. |
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| Chromosome Deletion Outreach | Education, Advocacy, Information & Support
For all those affected by a rare chromosome disorder. |
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| Unique | Rare chromosome disorder support group |
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